Today I took a lovely long walk, something that many would take for granted. For those with chronic health issues, syndromes it’s something that matters. When a syndrome leaves you so exhausted, has you in pain on an ongoing basis etc…that you go stretches of time crashing in bed and not being able to even enjoy a walk, sitting outside in your favorite spot, having your ipod and listening to great music and meditation material. The best nutshell way to describe it is this: a complete physical, mental, emotional, spiritual assault on your body. This is one of the things I miss, that Fibromyalgia since it has flared up with a vengeance. I am hoping to reclaim that and a few other things. One of the things that makes those of us fighting chronic health issues and syndromes is when people say stuff like “but you look good” “maybe if you got out more” “you just need to push yourself more” People may mean well, but for us, these sound like what is being said is “you’re faking, lying” and “you’re just lazy, or exaggerating” My thought when anyone gives the kind of advice or nuggets of wisdom mentioned here is “no you S.O.B. I am not fine, not OK, not lazy, what the hell do you know about it?” I just want to smack the person and sometimes just want to cry from the frustration.
What might cause a flare up of Fibromyalgia or these types of syndromes:
What can you do if your dealing with chronic health issues such as pain, such as fibromyalgia? Consult your doctor before try anything to alleviate any symptoms etc.. Here are some suggestions, starting with foods. Try to incorporate anti-inflammatory foods such as: flaxseed, green tea, avocado, cantaloupe, walnuts, pineapple, berries, garlic, broccoli. Aromatherapy with certain oils as you meditate, even in your bath, such as:Balsam Fir, Bergamot, Roman Camomile, Rosemary, Lavender, Eucalyptus, Clary Sage. As far as exercise, you have to be careful when you have syndromes such as fibromyalgia. I for example am so hypersensitive I can not do any physical therapy, have any massage other than hot stone massage, do tai chi, walk. You need to consult your doctors about what type of exercise you can handle, is recommended for you. If you are crashing a lot, lots of fatigue, you can do some basic very light stretches at home, put on some music that is upbeat and some light dance moves, nothing strenuous, just to get the circulation moving. For me what also helps is spirituality and meditation, it’s a great anchor in the midst of the chaos that is fibromyalgia. I hope this helps, and that if you encounter anyone or have anyone with a chronic health issue or syndrome in your life this will help you understand, just a little bit better. On a final not I leave you with this, the stages of fibromyalgia, but this can apply to any syndrome or chronic health issue situation.
Oy and Oy!!